Save the Brompton's Children's Respiratory Services
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The proposed withdrawal of the children's heart services at the Royal Brompton Hospital has serious implications for the future of provision of services for children with Cystic Fibrosis (CF), Muscular Dystrophy, Severe Asthma, PCD (Primary Ciliary Dyskinesia) and other rare lung diseases across London and the South East.

This website is created and updated by parents with children that have one of these life threatening conditions and are all treated at the Royal Brompton...

Join us in our campaign to protect the services on which our children depend and give them the bright future they deserve.
Last Chance to Make Your Views Known 

Update 7 March 2013: The "Save Our Surgery" campaign group (a group of cardiac clinicians and parents of paediatric cardiac patients at Leeds) has won its judicial review against the JCPCT's reconfiguration decision. More to follow!

Update 4 February 2013: The CF Trust's submission to the Independent Reconfiguration Panel can be found here.

Update 25 January 2013: The JCPCT’s decision to de-designate the Brompton as a children’s cardiac surgery centre is being reviewed by an organisation called the Independent Reconfiguration Panel (IRP).

The IRP is keen to hear the views of Brompton respiratory patients and carers on two issues in particular:

  1. First, the impact upon respiratory patients of closure of the Paediatric Intensive Care Unit (in terms, really, of the impact of the sort of changes proposed by the Pollitt panel).
  2. Second, whether we felt that we had been listened to during the S&S review process.

The panel will be reporting to the Secretary of State on 28 March 2013. The panel positively encourages parents and patients to make submissions to it. All submissions should be made by the end of February.

To help frame a submission to the panel, please read the briefing paper for the engagement exercise which was jointly prepared by Asthma UK and the CF Trust together with the CF Trust’s submission to the engagement exercise. Additional background materials (including the Pollitt report and letters to the JCPCT from the respiratory charities and international experts) remain available here.

Anyone wishing to share their views or provide new evidence as part of this review can do so in the following ways:

·      By email: info@irpanel.org.uk

·      In writing: IRP, 6th Floor, 157-197 Buckingham Palace Road, London SW1W 9SP

 
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